Genetic Testing Stories
by Nicole Exe, et al.
Publisher: Genetic Alliance 2006
Number of pages: 60
Here is a collection of incredible stories: the stories of men, women, and children who have suffered from uncertainty, misdiagnosis, a lack of options and, in some cases, tragic loss. They offer us a window into the world of diagnostic odyssey: a sometimes quick and effective label and other times a very long and frustrating journey.
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by David Heyd - University of California Press
Unprecedented advances in medicine, genetic engineering, and demographic forecasting raise new questions that strain the categories and assumptions of traditional ethical theories. Heyd's approach resolves many paradoxes in intergenerational justice.
A collection of articles that discuss genes and the diseases that they cause. These genetic disorders are organized by the parts of the body that they affect. With each genetic disorder, the underlying mutation is discussed.
- Genetic Alliance
The goal of genetic counseling is to help you learn more about the causes of genetic conditions and how they affect you. Genetic counselors can review your family medical histories and explain how genetic conditions are passed down through families.
- National Academies Press
This study examines the ethical issues related to MRTs, outlines principles that would provide a framework for oversight of MRTs, and develops recommendations to inform the Administration's consideration of investigational new drug applications.